Posts

Showing posts with the label exhaustion

We Are All Tired But It's OK

Image
 I woke up this morning and I just feel tired. Tired in my bones. I'm on another quarantine. And I'm here to tell you that I'm straight out over it. I'm a homebody by nature. My hobbies and interests are primarily solitary activities that require no social interaction. I like nothing better than reading a good book or crafting something with yarn or thread. I have a stash of crafting supplies that is almost  embarrassing. I have the luxury of being able to work from home when needed. So when one of my children got sick, I was exposed to her and we are waiting on test results and a quarantine was decided to be the best bet - it's not really that big of a deal, right? Well you would think not. Except the second I'm told I can't, or shouldn't do something, my desire to be contrary rises to the surface and all of a sudden I come up with eleventy billion reasons to leave my house. It's like that teenage rebellion was never completely squelched. I've d...

Grief is sneaky

Image
I woke up crying for the first time in a very long time. I was dreaming. My whole extended family was first in a home that doesn't actually belong to anyone I know, but it was supposed to, and there was all kinds of the normal gossip that surrounds family gatherings. Lots of food. Gatherings in groups. Weird things that should never happen in real life but happen in dreams. Then the scenes changed and all of a sudden the family is all in some type of place for an event. And it seems like a birthday party. But it isn't. But it should be. And there's a disagreement over the treatment of homegrown vegetables and their use as fertilizer in a garden. And then my mom is angry that I won't eat a ham and cheese sandwich my husband got for me. Even though he knows I hate ham and cheese. He got me two different types to try. She says she hates ham and cheese too. And then it hits me that everything is wrong. It's all so wrong. Because my mom loves ham and cheese. And while sh...

Foggy Days

I'm in a fog today. I spent last night writing up the story of Dad's progression through this nightmare. As usual, I couldn't manage it without some tears. But I got through it and emailed it to him. We posted it on Facebook and GoFundMe for anyone who wants all of the sordid details. In order to write such things, you're forced to relive them. And I wonder how long it will be before reliving them doesn't make me feel like the wounds are ripped open again. When the pain and loss won't feel so new, so fresh. Because you can't tell a story about Dad without telling one of Mom too. I know it will be worse when I go back home, to my "normal" life. Part of me is dreading it. As much as I miss my husband, girls, cat and my bed - I know that when funny things happen I can't call and tell Mom all about it anymore. I can't call her for advice or for the recipe of dishes I know how to make but can't remember. I can't call her to vent my fru...

12.5 Hours

I spent 12.5 hours at the hospital today. My first interaction began at 4am when the nurse called to give me report on my dad's status. He had a really rough night. And once I was up, I may as well stay up, so I got ready and headed down. While on my way I got another call letting me know they were taking him down to CT. I lost count midway through the day how many tests and procedures he had done today. I will tell you that when I left, his vitals were stable, all 6 of his drains were operational, I witnessed my first NG tube placement today and I got to be a patient advocate. I also am a pro at mouth swabs and suctioning the moisture from the mouth swabs. I also know where all of the linens are kept, can wipe down faces like a pro and can stand my ground even when witnessing someone I love in pain or under duress. Nothing tests your strength or your fortitude quite like necessity, but I'm grateful for every second that I am here. That I am able to be here and stand and re...